Conference Presentation, Other
Building the Future of Health Data
- Faster Cures plans to accelerate scientific progress to patients and build a future where health data is accessible, secure, ethically, and transparently used to benefit all.
- The organization aims to develop the future of health data by uniting a diverse community of traditional healthcare organizations, consumer companies, patient groups, digital health innovators, medical researchers, product developers, and patients.
- Tools created through the Health Data Basics initiative are intended to demystify health data, enabling patients to better understand and manage their conditions while advancing medical research.
- Data derived from everyday digital technologies, such as smart scales and activity trackers, is expected to facilitate earlier diagnoses and enable better prediction and prevention of disease.
- Pooling tumor genetic data and clinical trial data, alongside increased patient participation, is predicted to lead to the development of more targeted therapies.
- Significant barriers are expected to include the lack of data flow between providers, limited patient access and control over their data, and systems that often fail to revolve around patient needs.
- Risks identified include potential data security breaches, misuse of data contrary to patient intent, unclear data usage regarding care or research, and the subsequent erosion of trust.
- Faster Cures intends to address these challenges by fostering trust among all system actors through a set of shared values to ensure data security and appropriate use.