Conference Presentation, Panel
Health Citizenship: The Nexus of Data, Technology and Research
Milken InstituteMargaret Anderson, Stephanie Devaney, Eric Friedman, Joyce Tung, Bernard J. Tyson, Roni Zeiger
- Faster Cures intends to maintain "health citizenship" as a core cross-cutting theme based on 150+ pre-election interviews and anticipates a shift toward two-way dialogue between patients and healthcare systems.
- Kaiser Permanente plans to open its first medical school in Pasadena, California, in 2019, while the organization redefines its model to focus on "equity" by concentrating resources to raise health outcomes for specific populations.
- Kaiser Permanente projects virtual encounters will continue to grow, having reached approximately 100 million (over 52% of total) via phone, messaging, or video last year, with mobile vans and cell technology deployed to reduce care disparities.
- Bernard Tyson anticipates the industry will transition from an episodic sick-care model to one maximizing healthy life years, requiring a redefinition of physician productivity to value data synthesis and team-based management over patient counts.
- Eric Friedman predicts Fitbit's platform will enable continuous (364 days/year) data and coaching for patients, specifically to build treatment plans for liver transplant queues and potentially reduce A1C levels through real-time metrics.
- 23andMe expects to deliver increasing DNA reports to customers as findings emerge, fostering a dialogue for informed decision-making, with whole genome data projected to become actionable within a 5 to 20-year timeframe compared to current limited genotyping capabilities.
- The All of Us program aims to engage 60+ partners to build infrastructure, intending to begin participant enrollment shortly thereafter and allow participants to choose information reception, starting with surveys before providing actionable genetic results.
- Stephanie Devaney expects the All of Us program to digitize engagement models inspired by the Framingham study to determine scalability, while feeding feedback on single IRB implementation hurdles directly to the NIH Office of Science Policy.
- Ronnie Zeiger hypothesizes that within 10 years, informed consent may involve peer consultations, as only about 0.33% of clinicians currently introduce patients, and notes social connectedness is predictive of breast cancer recurrence and mortality.
- The group anticipates regulators are willing to engage in fact-based dialogue to adapt to the 21st-century context, with the 21st Century Cures Act tracker published to clarify deadlines for all stakeholders.
- Eric Schmidt and the moderator expect that while regulations ensure safety, the industry must evolve the regulatory paradigm to match legislative spirit, acknowledging the complexity of transforming from individual care to team-based patient management.