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Blood Cancer United Launches REALworld: AML to Accelerate New Treatments for Children with Blood Cancer

  • Blood Cancer United® co-founded the "Dare to Dream REALworld: AML" initiative with the Rally Foundation for Childhood Cancer Research to build a real-world dataset for pediatric acute myeloid leukemia (AML) research.
  • The project engages current & former pediatric AML patients & families to generate evidence that informs research, accelerates clinical trials, & helps design more efficient studies.
  • Tempus provides technology support for the initiative, including the "Olivia" personal health concierge app that aggregates patient records & delivers personalized educational resources.
  • The initiative aims to create a rigorous dataset for understanding pediatric AML, potentially supporting external control arms to compare investigational therapies against validated historical data.
  • Abby Breyfogle shares the health records of her twin daughters, Kenedi & Kendal, to contribute to the dataset after Kendal passed away from AML in 2017 & Kenedi remains in remission.
  • Families can participate by sharing electronic health records from children living with or in remission from pediatric AML, with plans to include records from deceased patients in the near future.
  • REALworld: AML operates under the broader "Dare to Dream" project, which also includes the PedAL Master Clinical Trial & efforts to expand access to investigational therapies & support services.
  • Blood Cancer United acknowledges key partners including the Rally Foundation, Big Nova Foundation, & The Harry T. Mangurian Jr. Foundation for their contributions to the initiative.
Company
Blood Cancer United® formerly The Leukemia & Lymphoma Society
Keywords
Blood Cancer United® formerly The Leukemia & Lymphoma Society